Limb Loss & Differences
Limb loss and limb differences describe the absence or underdevelopment of a limb, either from birth or due to injury, illness, or surgery. These conditions can impact movement, function, and self-image, but many individuals thrive with the right support. Rehabilitation, prosthetics, and adaptive tools can help people regain independence and participate fully in daily life. Emotional support and peer connections also play a key role in adjustment and well-being. With personalized care and resources, people with limb differences can lead active and meaningful lives.
Maine Resources
Living with Amplitude - Maine Community Resource Directory - Provides a searchable listing of local services and support for people living with limb loss. It includes access to prosthetic providers, rehabilitation clinics, peer support groups, and recreational programs across the state. The directory features resources like the Amputee Association of Maine, which offers education, community events, and advocacy. Users can easily filter results by service type and location to find support that fits their needs. This directory is a helpful tool for amputees seeking regional assistance and connection.
Amputee Association of Maine - Dedicated to empowering individuals with limb loss throughout Maine. AAM offers a comprehensive resource directory featuring local prosthetic providers, rehabilitation services, adaptive sports programs, and peer support networks. The organization also hosts community-building events, such as the annual Gorham Savings Bank Maine Adapted Open golf tournament, to foster connection and camaraderie among amputees and their families. Through education, advocacy, and accessible resources, AAM strives to create a supportive environment where individuals affected by limb loss can thrive.
So Every BODY Can Move - Maine Chapter - A national advocacy initiative working to expand insurance coverage for prosthetic and orthotic devices that enable physical activity for people with limb loss and mobility impairments. In Maine, this effort led to the passage of LD 1003, a law signed in May 2022 and effective as of January 1, 2024, which requires state-regulated commercial insurance plans to cover an additional prosthetic device for children under 18 to support physical activity and exercise . This legislation addresses longstanding coverage gaps that previously left families facing out-of-pocket costs ranging from $5,000 to $50,000 for recreational prostheses . By ensuring access to activity-specific prosthetic care, LD 1003 promotes inclusion, health, and mobility for Maine’s youth with disabilities.
MaineGeneral - Amputee Rehabilitation - Offers personalized outpatient care for individuals adjusting to life after limb loss. Their experienced therapy team provides support from the early stages of recovery, including residual limb desensitization and shaping, through to prosthetic training and functional rehabilitation. Services are tailored to each patient's needs, focusing on improving mobility, independence, and quality of life. Whether you're recovering from a recent amputation or adapting to changes years later, MaineGeneral is committed to helping you achieve your goals. Services are available at multiple locations, including Augusta, Oakland, and Winthrop.
Camp No Limits - Dedicated to educating and empowering children with limb loss or limb differences (and their families) to lead healthy, happy, and independent lives. Through its flagship program, Camp No Limits, the foundation offers nationwide camps that provide adaptive recreation, mentorship, and therapeutic support in a welcoming and inclusive environment. Since its inception in 2004, the program has expanded to 12 locations across the United States, serving over 2,000 families. The foundation is committed to fostering diversity, equity, and inclusion, ensuring that all participants feel supported and valued.
Regional Resources
Heather Abbott Foundation - Apply for a Grant - Provides grants to individuals who have experienced limb loss due to traumatic circumstances, aiming to assist them in obtaining specialized prosthetic devices not typically covered by insurance. Applicants are required to complete a detailed application form, sharing their personal story, the type of prosthesis needed, and any prior efforts to secure funding or insurance coverage. The Foundation's Board of Directors reviews each application to determine eligibility and the potential to fulfill the request. While not all applicants may receive assistance, the Foundation strives to refer individuals to other charitable organizations when possible.
New England Amputee Association (NEAA) - Based in Clinton, MA, NEAA offers peer support, educational events, and social gatherings for individuals affected by limb loss. They also facilitate peer visits and host community events.
COP Amputee Association (COPAA) - Located in Connecticut, COPAA is a support group comprising individuals who have experienced limb loss or difference, along with their families and caregivers. They focus on promoting independence and quality of life.
Helping Hands Foundation - This Massachusetts-based group supports families of children with upper limb differences. They organize annual events, including a winter weekend gathering, to foster community and share resources.
National Resources
Amputee Coalition - The leading national nonprofit organization advocating for people affected by limb loss and limb difference. They provide comprehensive educational resources, peer support programs, advocacy efforts, and public awareness campaigns. Through their National Limb Loss Resource Center, they offer free information and referrals to community resources, insurance navigation, and adaptive recreational opportunities. The Coalition also maintains a Peer Support Network of over 1,000 trained volunteers, organizes youth camps, and spearheads initiatives like Limb Loss and Limb Difference Awareness Month every April.
Lucky Fin Project - A nonprofit organization that celebrates the beautifully diverse world of upper limb differences. Inspired by the Pixar character Nemo (with his “lucky fin”), this community-driven group connects individuals with limb differences and their families, raises awareness, and promotes acceptance and inclusion. They distribute outreach materials to hospitals and schools, offer financial assistance for prosthetics and adaptive equipment, and host annual Lucky Fin Weekends, bringing families together for fun, networking, and workshops.
The Limbs for Life Foundation - A national nonprofit organization providing fully funded prosthetic care for uninsured or underinsured individuals who cannot otherwise afford it. Their mission ensures that no amputee goes without a prosthetic limb due to financial constraints. They also offer educational resources, collaborate with prosthetic clinics nationwide, and raise public awareness about the physical and emotional impacts of limb loss. Their prosthetic assistance program covers all ages and levels of limb loss.
The Challenged Athletes Foundation (CAF) - Empowers people with physical challenges, including limb loss and limb difference, to lead active lifestyles and participate in sports. CAF provides adaptive sports equipment grants, coaching, mentorship programs, and organizes inclusive athletic events. The foundation believes that involvement in sports builds confidence and community, and helps redefine what’s possible after limb loss. Their annual CAF San Diego Triathlon Challenge is a high-profile fundraiser that celebrates adaptive athletes nationwide.