Endometriosis
Endometriosis is a chronic, often painful condition where tissue similar to the lining of the uterus grows outside the uterus—most commonly on the ovaries, fallopian tubes, and pelvic lining. These growths can cause inflammation, severe menstrual cramps, pain during intercourse, digestive issues, fatigue, and even infertility. Symptoms vary widely, and diagnosis can take years. Although there is no cure, treatment options like hormonal therapy, pain management, and surgery can help manage symptoms and improve quality of life. Early diagnosis and support are key to effective care.
Maine Resources
Central Maine Healthcare - Gynecology - With locations in Lewiston, Rumford, and Bridgton, Maine, Central Maine Healthcare’s gynecology team provides a full range of care, from routine well-woman exams to advanced diagnostics and minimally invasive surgeries. Utilizing the latest technologies, they address various gynecologic conditions, including endometriosis, with a focus on personalized treatment plans.
MaineGeneral Health - Gynecology Department - Provides comprehensive gynecological care for women across all stages of life, including specialized treatment for endometriosis. Their experienced team offers services such as preventive care, contraception, menopause support, and management of conditions like heavy bleeding, fibroids, and endometriosis. Utilizing advanced techniques, including minimally invasive robotic surgery, MaineGeneral aims to enhance recovery times and patient outcomes. With locations in Augusta and Waterville, they deliver compassionate, patient-centered care tailored to individual needs.
MaineHealth - Reproductive Endocrinology - With a network of OB/GYN specialists across Maine and parts of New Hampshire, MaineHealth provides accessible, patient-centered care to support individuals who are facing challenges such as endometriosis, fibroids, polycystic ovary syndrome (PCOS), infertility and other hormonal or reproductive health issues. Their services include consultations, diagnostic testing, and personalized treatment plans aimed at addressing infertility and related conditions.
New England Center for Pelvic Health - Provides specialized care for individuals with endometriosis and other pelvic health conditions. Their team focuses on comprehensive diagnosis, personalized treatment plans, and minimally invasive surgical options to help manage pain and improve quality of life. The New England Center for Pelvic Health combines medical expertise with compassionate care to support patients through every step of their treatment journey.
Regional Resources
Boston Center for Endometriosis - A clinical and research center dedicated to transforming the diagnosis, treatment, and understanding of endometriosis, particularly in adolescents and young adults. Their team provides expert multidisciplinary care, including gynecology, pain management, and mental health support. The Center also leads innovative research and promotes education and advocacy to improve long-term outcomes and raise awareness.
Boston IVF - Understanding Endometriosis - With a focus on improving fertility outcomes, Boston IVF combines cutting-edge technology with compassionate care to help patients navigate the challenges of endometriosis-related infertility. Their team provides comprehensive support, including advanced diagnostic tools, minimally invasive surgical options, and personalized treatment plans tailored to each patient's needs. This resource provides additional information on understanding endometriosis and a patient’s options for diagnosis, treatment, and more.
Center for Young Women's Health - In partnership with Boston Children’s Hospital, this resource offers live online health chats where teens can ask questions anonymously and get answers from medical experts. These chats cover a range of health topics, including endometriosis, and provide a safe, judgment-free space to learn and connect. The chats are monitored by a nurse specialist, to prevent the spread of misinformation and to better support chat goers.
Parkland Medical Center - Located in Derry, New Hampshire they offer comprehensive gynecological care, including the diagnosis and treatment of endometriosis. With a focus on patient comfort and long-term health, Parkland Medical Center aims to support women through all stages of life. Their team provides personalized, lifelong care for various women's health conditions, utilizing both surgical and nonsurgical treatment options.
National Resources
Endometriosis Association - A nonprofit whose mission is to find the cause of and cure for endometriosis, while providing education and support to those affected. The Association offers helpful resources such as support networks, educational materials, and updates on ongoing scientific studies. Their work focuses on improving quality of life, raising awareness, and advancing understanding of the disease.
Endometriosis Foundation of America (EndoFound) - A nonprofit organization dedicated to increasing awareness, advancing research, and providing support for individuals affected by endometriosis. EndoFound offers educational materials, patient and provider resources, community events, and advocacy initiatives to promote earlier diagnosis and improved care. Their mission is to improve the quality of life for all those impacted by endometriosis through empowerment, education, and innovation.
Facebook - gynoQueer - A small Facebook based support group. Their description reads: “The group gynoQueer was created as a space for LGBTQIA+ individuals with Endometriosis.” A Facebook account is required to interact with this group.
Facebook - Nancy's Nook Endometriosis Education - A large Facebook support group focused on evidence-based education about endometriosis. The group connects members with curated research, specialist recommendations, and peer support from others living with the condition. Moderated by advocates and informed volunteers, Nancy’s Nook emphasizes surgical care, accurate information, and community learning to help individuals make empowered health decisions.
MomminWithEndo - A nonprofit organization dedicated to supporting individuals living with endometriosis. It provides financial assistance by directly paying medical facilities to help cover surgeries, procedures, and treatments that insurance does not cover, aiming to remove financial barriers to endometriosis diagnosis and treatment.
MyEndometriosisTeam - A social network and support community for people living with endometriosis. The platform allows users to connect, share experiences, ask questions, and find emotional support from others who understand the challenges of the condition. It also provides medically reviewed resources on treatment, symptoms, and coping strategies, making it a helpful space for both emotional connection and practical guidance.
Society for Women's Health Research - Endometriosis Toolkit for Teens - A comprehensive guide designed to help young people better understand and manage endometriosis. The toolkit explains symptoms, diagnosis, treatment options, and how to advocate for care, all in a teen-friendly format. It also provides tips on managing school, mental health, and doctor visits—empowering teens to take charge of their health with confidence.
SpeakEndo - An educational resource created to empower people with endometriosis through knowledge and advocacy. The website offers clear, accessible information about symptoms, diagnosis, treatment options, and how to talk to healthcare providers. It also features personal stories, downloadable tools, and conversation guides to help individuals better understand their condition and feel more confident navigating care.
The Center for Endometriosis Care (CEC) - An internationally recognized treatment center specializing in the advanced, multidisciplinary care of endometriosis. Their team provides expert surgical treatment—particularly excision surgery—as well as comprehensive patient education and advocacy. The CEC emphasizes individualized, evidence-based care and is committed to improving long-term outcomes through compassionate support, ongoing research, and public awareness initiatives.
YouTube - Living With Endometriosis as a Transgender Patient - A trans man’s personal account on living with Endometriosis. While this isn’t (technically) a resource for more information, this video may help queer people with Endometriosis feel more understood and seen.