Breath & Shadow
June 2026 - Vol. 23, Issue 3
"to be alive at all (to go to pillow writers) is miracle enough"
written by
Sasha Levin
Sometimes I don’t know how to separate my M.E.
from the violence that left it growing in my body
an unwanted, destined never to bear, pregnancy
a horror vivisecting me, this child no changeling
This illness that left me with undesired regularity
wrapped round my womb to run it like clockwork
as if I ever planned to birth anything from there
the pain cutting through me, blinding at its worst
Brambles and thorns choking out the natives
growing inside my lungs planted by betrayal
to an illness I was desperate to be protected from
I was already vulnerable. I was already vulnerable.
But as violent as the coming was, my M.E. is me
even as the vestiges of this fell virus still rend
my battered lungs and twirl tornadoes across
the neurons that ought to be closely intertwined
Loving myself means I have to love me with my M.E.
I have never faltered in love of this disabled body
I have adored the cane turned to rollator turned
to gifted wheelchair, I have loved me bedbound
It has not been more difficult to accept my M.E.
because it is ‘more severe.’ It is harder because of
the treachery, the sorrow, the fear, since the ones
who infected me received the care I am still denied
But they cannot harm me anymore because my body
is mine to protect, to love, to shield, to deny them
and when this chronic fatigue has blessed me with
the most wonderful community, I cannot hate M.E.
I will never believe that the covid that disabled me
was inevitable as those who built that Trojan horse
told me that it must be, but I have learned that it is
not a living hell on earth, since love is other people
To be alive at all is a miracle. the perfiidy had cut
me so sharply that there were days I wished that
I had died, my body dissected for science, buried
the way that they all wanted to bury their guilt
In the first year most days i didn’t want to live
I only stayed because I believed i was needed
as a warning against unmasking but that was
no way to live a life, no way to know a miracle
I yearned that there might come a day for me
when I would finally be free of hurt, that those
who love me would act to protect me without
being begged and without constant reminders
And I have found them, in spaces online where
I don’t have to mind illness as my vulnerability,
from friends who show up, N95 on or in hand,
from my love too who masks across the ocean
And when I feel soft orange fur under my skin
and see Stoo’s cat climbing beneath a blanket,
bum shoved directly in his face, as he reads
I feel so giddily alive, and the world is alright
To hear your poetry is to hear the beauty in mine
to see you propped up on pillows like a reflection
a mirror of myself, to know that we do not have
to sit to be heard, nor always to read to be writers
To know others with M.E. is to love each one
From the wholeness of me. And I have learned
that it is to love myself, to love my M.E. too,
to sing, to read though it’s harder to breathe
Tongue swollen but my heart is big enough
that I nearly don’t notice it or my tightened
throat because these words need to leave it
so I can tell you how much you mean to me
Because this is not to say there is no horror
as I join you on these pillow dates from bed
and I write poems like love letters to be read
but to be alive is a miracle, and it is enough
Sasha Levin (they/them/theirs) is a multiply disabled poet, forager, and cat lover learning to breathe again. They believe a better world is possible, and that together we can write it.

