Breath & Shadow
Summer 2010 - Vol. 7, Issue 3
"Alzheimer’s: Living with Dementia"
written by
Patricia Oh & Others
once we thought THEY
were just wacky/crazy
zombies
forgetting everything
Oh you are…?
now
something's wrong
with us
DIAGNOSIS.
trapped behind neurons
terror cancer
of memory
Really? You can’t catch it?
That’s what the doctors said?
We promise. Promise.
We: ghosts of ourselves
listen to us
you don't know this disease
don't know it can be
a place of transformation
connection
yes
differences evolve
lives shift
yet
We are ourselves
we still
engage in laughter
people
ice cream
we still
share fun
we still
use humor - with compassion
he says: A guy is still a guy
persistent
competitive
a winner
we say: We are still who we are
we do what we have to do
to live with passion
to continue with life
to help people understand
call it hutzpah if you will
but:
We have a future
we are:
beautiful
luminescent
positive
we are:
creative spirits
connectors
truth tellers
we are:
sunshine
A shared experience
We are new
we have purpose
we are becoming
we are living
WE Are.
This poem was written by a group of people diagnosed with progressive memory loss who are members of the Maine Chapter of the Alzheimer’s Association. Because of the stigma sometimes associated with the disease, they prefer to remain anonymous.