"Alzheimer’s: Living with Dementia"

Written By

Patricia Oh & Others

once we thought THEY

were just wacky/crazy

zombies

 

forgetting everything

 

Oh you are…?

now

something's wrong

with us

DIAGNOSIS.

trapped behind neurons

terror cancer

of memory

     Really? You can’t catch it?

     That’s what the doctors said?

We promise. Promise.

 

We:     ghosts of ourselves

 

listen to us

you don't know this disease

don't know it can be

a place of transformation

     connection

 

yes

differences evolve

lives shift

yet

We are ourselves

 

we still

engage in laughter

people

ice cream

 

we still

share fun

 

we still

use humor - with compassion

 

he says: A guy is still a guy

 

persistent

competitive

a winner

 

we say: We are still who we are

we do what we have to do

to live with passion

to continue with life

to help people understand

 

call it hutzpah if you will

but:

We have a future

we are:

beautiful

luminescent

positive

 

 

we are:

creative spirits

connectors

truth tellers

 

 

we are:

sunshine

A shared experience

We are new

 

we have purpose

 

we are becoming

 

we are living

 

WE Are.

This poem was written by a group of people diagnosed with progressive memory loss who are members of the Maine Chapter of the Alzheimer’s Association. Because of the stigma sometimes associated with the disease, they prefer to remain anonymous.