Traumatic Brain Injury (TBI) Guide


Maine TBI Resources

National Organizations

Prevention

Rehabilitation

Assistive Technology

General Information

TBI Guides Online

Books and Videos

Chat Rooms and Message Board Listing

International TBI Websites

More Links

The information below is intended to help you locate relevant health, medical and personal resources on Traumatic Brain Injury (TBI). The links below are the most current that we could locate for you. We hope you find them helpful in your search for information. -Russell Anderson

*** Disclaimer ***

Ability Maine does not imply endorsement of these sites, their content or products. Use of this information is intended only for educational purposes, as reference points to prompt your search for accurate information pertaining to your personal issues around Traumatic Brain Injury. Professional advice or consultation should be sought from a qualified and licensed practitioner when inquiring about medical services.


Definition of "Traumatic Brain Injury"
Our nation's special education law, the Individuals with Disabilities Education Act (IDEA) defines traumatic brain injury as... "...an acquired injury to the brain caused by an external physical force, resulting in total or partial functional disability or psychosocial impairment, or both, that adversely affects a child's educational performance. The term applies to open or closed head injuries resulting in impairments in one or more areas, such as cognition; language; memory; attention; reasoning; abstract thinking; judgment; problem-solving; sensory, perceptual, and motor abilities; psycho-social behavior; physical functions; information processing; and speech. The term does not apply to brain injuries that are congenital or degenerative, or to brain injuries induced by birth trauma." [34 Code of Federal Regulations 300.7(c)(12)]

More than 5.3 million Americans live with a disability as a result of a traumatic brain injury.

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Maine TBI Resources


Brain Injury Association of Maine
http://www.biame.org/

TBI Support Groups In Maine
http://www.biame.org/support.html
People to contact for participation in groups throughout Maine.

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National Organizations


Brain Injury Association of America
http://www.biausa.org/
The Brain Injury Association of America was founded in 1980 by a group of individuals who wanted to improve the quality of life for their family members who had sustained brain injuries. Despite phenomenal growth over the past two decades, the Association remains committed to its grassroots. The Brain Injury Association of America encompasses a national network of more than 40 Chartered state affiliates across the country as well as hundreds of local chapters and support groups.

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Prevention


National Center for Injury Prevention and Control
http://www.cdc.gov/ncipc/factsheets/tbi.htm
An overview of TBI, causes and effects

TBI Prevention
http://www.asha.org/about/publications/
leader-online/archives/2002/q2/020625a6.htm

Measures taken that can prevent TBI.

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Rehabilitation


Rehabilitation of Persons with Traumatic Brain Injury
http://consensus.nih.gov/1998/1998TraumaticBrainInjury109html.htm
A technical document that presents a comprehensive overview of TBI.

National Rehabilitation Information Center (NARIC)
http://www.naric.com
This organization is funded by the National Institute on Disability and Rehabilitation Research (NIDRR) to serve anyone, professional or layperson, who is interested in disability and rehabilitation. Provides 60,000 disability-related records regarding literature, organizations, timely information, and research in five databases. Also lists projects funded by NIDRR.

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Assistive Technology


AbilityHub
http://www.abilityhub.com/
Assistive Technology for people with a disability who find operating a computer difficult, maybe even impossible. This web site will direct you to adaptive equipment and alternative methods available for accessing computers.

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General Information


Understanding How The Brain Works
http://www.tbiguide.com/howbrainworks.html

How The Brain Gets Hurt
http://www.tbiguide.com/howbrainhurt.html

TBI Alternatives
http://boomernet.com/tbi/alts.htm
The BOOMERNET Guide To Alternatives In Traumatic Brain Injury Rehabilitation

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TBI Guides Online


Acute Brain Injury - A Guide for Family and Friends
http://www.uihealthcare.com/topics/
medicaldepartments/neurosurgery/braininjury/index.html

Iowa Health Book: Neurology by The University of Iowa Hospitals and Clinics. A basic overview with easy to understand language.

neuroskills.com
TBI Resource Guide
http://www.neuroskills.com/

Subtle Brain Injury
http://subtlebraininjury.com/

Traumatic Brain Injury Guide
http://www.tbiguide.com/

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Books and Videos


TPN Resources List: Books and Videos
http://www.tbi.org/html/materials.html
Extensive listing of books and videos on TBI.

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Chat Rooms and Message Board Listing


TBI Chat Room
http://www.braininjurychat.org/

TBI Yahoo Group
http://groups.yahoo.com/group/TBI-Survivor/

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International TBI Websites


The International Brain Injury Association (IBIA)
http://www.internationalbrain.org/
Founded in 1993, the International Brain Injury Association is dedicated to providing international leadership, advancing opportunities and successes for persons with brain injury.

Head Injury Society of New Zealand
http://www.head-injury.org.nz/
The mission of this site is to provide basic information for people who are newly introduced to brain injury by the injury or illness of a friend or relative. The site is also a link between industry professionals and local support groups. Finally but perhaps most importantly the site will allow people in recovery from head injury to talk to each other by e-mail and to be advocates for their own needs.

Headway UK
http://www.headway.org.uk/
Our aim is to promote understanding of all aspects of head injury; and to provide information, support and services to people with a brain injury, their family and carers.

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More Links


Survivors Living Alone Proudly (SLAP)
http://injury_survivors.homestead.com/home.html
S.L.A.P.=Survivors Living Alone Proudly, provides on-line support and information for survivors of ANY disabling injury who are living alone.

Jodi House
http://www.jodihouse.org/links.htm
The mission of Jodi House is to create a nurturing place of order, caring, acceptance and motivation for people with acquired brain injury, and to provide opportunities for each person to discover new paths to regain responsible independence and effective interdependence to the best of our ability, in order to achieve worthwhile purposes in our community.

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A special thank you goes out to Marcia Cooper for helping define exactly what TBI information to use for the Ability Maine TBI Guide. Since 1988, Marcia has been a TBI survivor, and also an active voice in disability advocacy in Maine.


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