Post-Polio Syndrome Guide

The information below is intended to help you locate relevant health, medical and personal resources on Post-Polio Syndrome. The links are the most current that we could locate for you. We hope you find them helpful in your search for information. -Russell Anderson

*** Disclaimer ***

Ability Maine does not imply endorsement of these sites, their content or products. Use of this information is intended only for educational purposes, as reference points to prompt your search for accurate information pertaining to your personal issues around Post-Polio Syndrome. Professional advice or consultation should be sought from a qualified and licensed practitioner when inquiring about medical services.




Maine Resources


Post Polio Support Group of Maine (PPSGM)
The Post Polio Support Group of Maine is a private, non-profit 501 [c] (3) organization. We offer the latest information on the late effects of polio to more than nine hundred polio survivors, their families, and health care providers throughout Northern New England and parts of Canada. Support for our work comes from donations from the public and from a grant furnished by the Pine Tree Society.
http://www.ppsgm.org/

PPSGM Newsletters
http://www.ppsgm.org/newsletter/index.htm

PPSGM Board of Directors
http://www.ppsgm.org/directors/index.htm



What Is Post-Polio Syndrome?


National Institute of Neurological Disorders and Stroke (NINDS)
http://www.ninds.nih.gov/health_and_medical/pubs/post-polio.htm#whatis

National Institute of Neurological Disorders and Stroke Post-Polio Syndrome Fact Sheet
http://www.ninds.nih.gov/health_and_medical/pubs/post-polio.htm

Information about the Late Effects of Polio
http://www.post-polio.org/edu/pabout.html



Basic facts about PPS for polio survivors' doctors, family & friends.


National Post-Polio Organizations

Gazette International Networking Institute (GINI)
http://www.post-polio.org/index.html
Coordinator of International Polio Network (IPN)
http://www.post-polio.org/ipn/index.html
and International Ventilator Users Network (IVUN)
http://www.ventusers.org/index.html
Promoting health and independent living for polio survivors and home mechanical ventilator users.

March of Dimes Birth Defects Foundation
Uniting to Beat Polio
http://www.modimes.org/aboutus/789_821.asp



Living With Post-Polio Syndrome


New Mobility Magazine
After 15 years of digging, archaeologists from The Post-Polio Institute have unearthed 10 definitive "commandments" for treating post-polio sequelae.
http://www.newmobility.com/review_article.cfm?id=177&action=browse

Greater Boston Post-Polio Association
Member-Written Articles
http://gbppa.org/member_arts.htm

Living With Post-Polio Syndrome
http://healthlink.mcw.edu/article/996372413.html



Medical Information and Papers


Post-Polio Syndrome: Recently Published Medical Articles
This is a list of medical articles on Post-Polio Syndrome published from 1990 to 07/01/2002. http://www.i-sites.net/ppsma/medindx.html

Assistance for Breathing Problems of Polio Survivors
With Edward A. Oppenheimer, MD, FCCP, Pulmonary Medicine
Reported by Mary Clarke Atwood
http://skally.net/ppsc/breathe.html



International Post-Polio Support Groups


Lincolnshire Polio Network listing of Post Polio Group (UK)
The core of this site is an online library of well over one hundred full text articles on Post-Polio conditions, many from peer reviewed medical journals. The library is catalogued to assist reading order and new articles are added typically every few weeks. A categorized directory of Polio resources is also provided with every entry having a description. The regularly updated NewsBites section includes Polio related news items from around the world and all the bi-monthly LincPIN Post-Polio information newsletters are available in the Networking section.
http://www.ott.zynet.co.uk/polio/lincolnshire/

Post Polio Support Group (Ireland)
The Post Polio Support Group (PPSG) originated from a meeting of three Polio survivors in 1993. The object from the outset was to assist people who were experiencing the Late Effects of Polio including Post Polio Syndrome. As a result of media publicity surrounding the establishment of the group, many polio survivors experiencing problems contacted the organization. A significant problem for these people was the lack of information available to them about their condition. PPSG began to disseminate information and held a one-day national conference in May 1994. The group had input in designating the neuromuscular clinic in Beaumont Hospital, Dublin as the specialist medical location for polio survivors.
http://www.ppsg.ie/



More Links


Post-Polio Syndrome Central
Post-Polio Syndrome Related Internet Info and Support Resources
http://www.skally.net/ppsc/



Clinics


International Rehabilitation Center for Polio
The IRCP, a non-profit center, was started at the beginning of 2001 as an extension of the existing polio clinic directed by Dr. Julie Silver at the Spaulding Rehabilitation Hospital Network in Massachusetts. This original polio clinic drew people from all over the world and Dr. Silver recognized the need for an expanded clinic that would offer both more and better medical services to polio survivors who came to the IRCP seeking care.
http://www.polioclinic.com/



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