Resource Guide
for Individuals
who are Deafblind

 

Table of Contents

 

Introduction

Deafblindness

  • Education and Support Services for Deafblind Children
  • New England Center Deafblind Project
  • Visually Impaired/Hard of Hearing-Deafblind Network
  • Related Web Sites

Blindness and Visual Impairment

  • Division for the Blind and Visually Impaired (DBVI)
  • Education Services for Blind and Visually Impaired Children
  • The Iris Network (formerly known as Maine Center for the Blind)
  • Perkins School for the Blind

Deafness and Hearing Loss

  • Division of Deafness (DOD)
  • Division of Vocational Rehabilitation
  • Maine Center on Deafness
  • Governor Baxter School for the Deaf
  • GBSD Public School Outreach
  • Aroostook Outreach: GBSD
  • Bangor Outreach: GBSD

General Disability

  • Maine Department of Education, Department of Special Services.
  • Child Development Services (CDS)
  • Behavioral and Developmental Services (BDS)
    Children's Services
    Office of Deaf Services & Multi-cultural Diversity
  • Children’s Services
  • Office of Deaf Services
  • The Center for Community Inclusion
  • Maine Special Olympics
  • Developmental Disabilities Council

Family Support Services

  • Maine Parent Federation
  • GEAR Parent Network
  • Southern Maine Parent Awareness

Advocacy

  • Disability Rights Center of Maine
  • The Maine Long-Term Care Ombudsman Program
  • Maine Center on Deafness: Civil Rights Department

Transition

  • Maine Transition Network - Committee on Transition (COT)

Assistive Technology

  • Maine Relay Services
  • Telecommunications Equipment Project
  • Alpha One
  • Dorothy Ames Trust
  • HEAR NOW
  • Lions Clubs
  • UCP of Maine
  • Maine CITE Coordinating Center - University College

Services for Elders

  • Bureau of Elder and Adult Services
  • Area Agencies on Aging
  • Aroostook Area Agency on Aging
  • Eastern Agency on Aging
  • Senior Spectrum
  • Southern Maine Area Agency on Aging
  • Seniors Plus

Introduction

What does it mean to be "deafblind"?

Deafblindness refers to the combination of vision and hearing loss that affects an individual’s ability to function within his or her environment. Being deafblind presents unique challenges in learning about the world and often has an impact on one’s ability to communicate, move about freely, and interact with others. Many people who are deafblind have some usable vision and/or hearing.

What services are available to people who are deafblind?

Services are provided to individuals who are deafblind through a collaborative effort of agencies throughout the state. To learn more, contact Division for the Blind and Visually Impaired or Division of Deafness.

What is the purpose of this guide?

This Resource Guide is not meant to be an exhaustive listing of every resource in the state or country, but rather a listing of points of contact that can lead an individual to the information and services that meet his or her needs.

Return to Table of Contents


Deafblindness

Education and Support Services for Deafblind Children
Position Vacant

Education and Support Services for Deafblind Children is a collaboration between Division of the Blind and Visually Impaired, Catholic Charities Maine, and the New England Center Deafblind Project. ESSDBC provides consultation and technical assistance to professionals and parents of infants and school-age children (birth to 22) in Maine who are deafblind. Services include in-service training, program consultation, and technical assistance to schools and agencies that serve children who are deafblind. Program staff provide family support services and the dissemination of information to parents and professionals.


New England Center Deafblind Project
175 N. Beacon Street
Watertown, MA 02472
Tel: (617) 972-7517 (v)
TTY: (617) 924-5525
Fax: (617) 972-7354
Tracy Evans Luiselli, Coordinating Consultant
Email: nec@perkins.org
Website: http://www.necdbp.org

A federally funded project, the New England Center Deafblind Project provides consultation and technical assistance to professionals and parents of infants and school-age children who are deafblind in Maine, Connecticut, Massachusetts, and New Hampshire. Services include in-service training, program consultation and technical assistance to schools and agencies that serve children who are deafblind. The center also participates in a national count of children who are deafblind. Program staff provide family support services and the dissemination of information to parents and professionals.

Publications: A newsletter, entitled "In Touch" is published twice a year. A brochure is also available.


Related Web Sites:

American Association of the Deaf-Blind(AADB) is a national consumer advocacy organization for people who have combined hearing and vision impairments. AADB is open to all persons who are deaf-blind and individuals directly concerned with their well being, including spouses, children, friends, and health care professionals.
http://www.aadb.org

DB-LINK: The National Information Clearinghouse On Children Who Are Deafblind
DB-LINK is a federally funded information and referral service that identifies, coordinates, and disseminates (at no cost) information related to children and youth who are deafblind (ages 0 to 21 years).
http://www.tr.wou.edu/dblink

Helen Keller National Center
The mission of the Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC) is to enable each person who is deaf-blind to live and work in his or her community of choice. The vocational rehabilitation training program at HKNC's headquarters in Sands Point provides evaluation and training in vocational skills, adaptive technology and computer skills, orientation and mobility, independent living, communication, speech-language skills, creative arts, fitness and leisure activities. The curriculum is community-based and the transdisciplinary team works together to support an individual in achieving a vocational outcome.
http://www.helenkeller.org

National Family Association for Deaf-blind
NFADB is the largest national network of families focusing on issues related to deafblindness. http://www.nfadb.org/index.html

National Federation of the Blind – Deaf Blind Division
Resource List
http://www.nfb.org/nfb/deaf-blind_
resources.asp?SnID=1480695734

National Consortium on Deaf-Blindness
The National Consortium on Deaf-Blindness works collaboratively with families, federal, state and local agencies to provide technical assistance, information and personnel training.
http://www.nationaldb.org/

Teaching Research
Teaching Research (TR) is a Division within Western Oregon University (WOU) at Monmouth, Oregon. The Director of Teaching Research reports to the Provost. The faculty at TR (approximately 60) are assigned to grant funded research and development activities and some work on projects with faculty from the School of Education. The activities at TR cover a wide range of educational endeavors including studies examining the relationship between teacher effectiveness and student learning, a long history of model development and training in early childhood, and a major emphasis on special education issues and national technical assistance centers dealing with deafblind programs.
http://www.tr.wou.edu/

The Texas Association of Retinitis Pigmentosa
TARP is a nonprofit organization based in Texas. It serves as a national information sharing center to provide services to persons with progressive vision loss.
http://www.geocities.com/HotSprings/7815/

Boston Children's Hospital in conjunction with all New England States
The goal of this website is to enhance communication among parents, teachers, and doctors and to gather the New England Advisor e-Collaborative.
http://www.e-advisor.us

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Blindness and Visual Impairment

Division for the Blind and Visually Impaired (DBVI)
2 Anthony Avenue
150 State House Station
Augusta, ME 04333-0150
Tel: 1-800-698-4440 (V/TTY)
(207) 624-5959
Fax: (207) 624-5980
Kate Grogan, Bureau Director
Harold J. Lewis, Division Director
Paul Cote, Program Manager/Field Operations Manager
Email: paul.e.cote@maine.gov
http://www.state.me.us/rehab/

DBVI provides vocational rehabilitation, educational consultation services, independent living services and training to blind and visually impaired consumers of all ages. Counselors and blindness specialty staff are located in regional offices throughout the state.

DBVI Education Consultants

Alice Gay
DBVI
2 Anthony Ave.
Augusta, ME 04333
Tel: (207) 624-5145 (V)
Agay760474@aol.com

Jeff Jones
DBVI
45A Oak Street, Suite 1
Bangor, ME 04401
(207) 561-4021 (V)
Jeffrey.A.Jones@maine.gov

DBVI education consultants process referrals of children and youth who are blind and visually impaired. They play an advocacy role, particularly with transition issues.

Regional Offices:

Region 1:

185 Lancaster Street
Portland, ME 04101
Tel: 1-800-315-1192
(207) 822-0400
TTY: (207) 822-0412
Fax: (207) 879-7553

110 Main Street, Suite 1106
Saco, ME 04072
Tel: 1-800-521-5871
(207) 286-2600
TTY: 1-800-492-0670
Fax: (207) 286-2608

Region 2:

5 Mollison Way
Lewiston, ME 04240
Tel: 1-800-741-2991
(207) 753-9000
TTY: (207) 753-9067
Fax: (207) 753-9051

Region 3: (Central Office)

2 Anthony Avenue
150 State House Station,
Augusta, ME 04333
Tel: 1-800-698-4440 (V/TTY)
(207) 624-5959
Fax: (207) 624-5980

279 Main Street, Suite 1
Rockland, ME 04841-9914
1-800-432-1680 (V)
(207) 594-1834 (V)
TTY: 1-800-498-9262 Fax: (207) 594-1858

Region 4:

45 Oak Street, Suite 1
Bangor, ME 04401
Tel: 1-888-545-8811
(207) 561-4000


TTY: 1-800-498-6711
(207) 561-4003
Fax: (207) 561-4027

248 State Street, Suite 3A
Ellsworth, ME 04605-1850
Tel: 1-800-371-7543
(207) 664-2300
TTY: (207) 667-1576
Fax: (207) 667-4789

15 Prescott Dr. Suite 2
Machias, ME 04654
Tel: 1-800-770-7774 (V)
(207) 255-0130 (V)
TTY: (207) 255-1908
Fax: (207) 255-3091

98 North Avenue Suite 16
Skowhegan, ME 04976
Tel: (207) 474-4907
1-800-760-1572
TTY: (207) 474-4957
Fax: (207) 474-4914

Region 5:

91 Military Street
Houlton, ME 04730
Tel: 1-800-691-0033
(207) 532-5320
TTY: (207) 532-5301
Fax: (207) 532-5302
1st time clients call Presque Isle first

66 Spruce Street, Suite 3
Presque Isle, ME 04769-3222
Tel: 1-800-635-0357
(207) 760-6300
TTY: (207) 760-6312
Fax: (207) 760-6316


Education Services for Blind and Visually Impaired Children
1066 Kenduskeag Avenue
Bangor, ME 04401
Tel: (207) 941-2855 (v)
Fax: (207) 941-2835
Jean Small, Program Director
Email: esbvic@ccmaine.org

Regional Offices:

66 Western Avenue
PO Box 378
Fairfield, ME 04937
Telephone: 1-800-660-5231 (V)
(207) 453-4365
Fax: (207) 453-2453

15 Westminster Street
PO Box 1663
Lewiston ME 04241
(207) 784-0157 (V)
1-800-784-0157 (same as regular number) (207) 784-2453

Provides statewide direct instruction to blind/visually impaired children and consultation to parents and school personnel regarding the child's needs.

Instructional Materials Center
St. Paul's Center
136 State St.
Augusta, ME 04330
Tel: (207)621-8520
1-800-621-8520
FAX: (207)622-8520

The Center provides Braille, large print books and other specialized materials to meet the needs of students who are blind/visually impaired and their teachers.


The Iris Network
189 Park Avenue
Portland ME 04102
Tel: 1-800-715-0097 (v)
(207) 774-6273
FAX: (207)774-0679
Anisio Correia, Vice President for Program Services
Email: acorreia@theiris.org
info@TheIris.org
http://www.theiris.org/

The Iris Network (formerly known as Maine Center for the Blind and Visually Impaired) is a non-profit organization serving people of all ages in Maine who are blind or visually impaired. The Agency was founded in 1905, and provides rehabilitation services at its Portland campus as well as through seven outreach offices statewide. Services include a Residence PRogram, Computer Access Program, Vision REhabilitation Services and an Audio Information and REading Broadcasting SErvice, known as Maine Airs. Our goal is to empower people who are blind or visually impaired through education and training to lead active, meaningful lives. We provide rehabilitation, training education and related services for individuals and their families and other support systems. We are a resource in the state of Maine regarding issues related to blindness and visual impairment. The agency is accredited by the National Accreditation Council for Agencies Serving the Blind and Visually Impaired. It is funded in part by the State of Maine, and also from grants, and contributions from individuals, corporations and foundations.


Perkins School for the Blind
175 North Beacon Street
Watertown, MA 02472-2790
Tel: (617) 924-3434 (V)
Fax: (617) 926-2027
http://www.perkins.pvt.k12.ma.us

Perkins School for the Blind is a private residential school in Massachusetts that provides education and training to more than 170 students from birth to 22 years of age who are blind or visually impaired with additional disabilities or who are deafblind. In addition to their on-campus and outreach programs, they provide comprehensive interdisciplinary evaluations for students from 3 to 22-years old who are blind, blind with multiple disabilities, and deafblind. Students are evaluated to determine their special education and clinical needs and to make recommendations for their present and future programs. Teachers and clinical staff work as a team to create comprehensive individualized diagnostic evaluations

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Deafness and Hearing Loss

Division of Deafness (DOD)
Bureau of Rehabilitation Services
2 Anthony Avenue
150 State House Station
Augusta, ME 04333-0150
Jan DeVinney, Director
Tel: (207) 624-5964 (TTY only)
Email: jan.a.devinney@maine.gov

General Information:
Tel: 1-800-698-4440 (V/TTY)
(207) 624-5959 (V)
Fax: (207) 624-5980

Alice Crandall Johnson, Rehabilitation Consultant
Tel: (207) 624-5966 (V)
TTY: (207) 624-5965
Email: alice.c.johnson@maine.gov

The Division of Deafness offers services to deaf and hard of hearing citizens of Maine, including information and referral, advocacy, statewide registry, and accessibility promotion. DOD compiles and distributes a publication entitled Resources: A Guide to Deaf Services. Contact them for copies of this resource guide.

Division of Vocational Rehabilitation

Assists clients who are deaf and hard of hearing to attain employment and greater independence.

Division of Vocational Rehabilitation Offices (with Rehab Counselors for the Deaf):

Region 1

110 Main Street, Suite 1106
Saco, ME 04072
Tel: 1-800-521-5871 (V)
TTY: 1-800-492-0670
Fax: (207) 286-2608

Region 2:

5 Mollison Way
Lewiston, ME 04240
Tel: 1-800-741-2991 (V)
(207) 753-9000 (V)
TTY: (207) 753-9067
Fax: (207) 753-9051

Region 3:

73 State House Station
Augusta, ME 04333
Tel: 1-800-760-1573
(207) 624-5110
TTY: 1-800-633-0770
(207) 624-5111
Fax: (207) 624-5133

279 Main Street, Suite 1
Rockland, ME 04841
Tel: 1-800-432-1680 (V)
(207) 594-1834 (V)
TTY: 1-800-498-9262
Fax: (207) 594-1858

Region 4:

45 Oak Street, Suite 1
Bangor, ME 04401
Tel: 1-888-545-8811
(207) 561-4903
TTY: 1-800-498-6711
(207) 561-4003
(207) 561-4027

Region 5: (no RCD)

66 Spruce Street, Suite 3
Presque Isle, ME 04769
Tel: 1-800-635-0375
(207) 760-6300
TTY: (207) 768-6312
Fax: (207) 760-6343


Maine Center on Deafness
68 Bishop Street, Suite 3
Portland, ME 04103
Tel: 1-800-639-3884 (V/TTY)
(207) 797-7656 (V/TTY)
Fax: (207) 797-9791
Jonathan Connick, Executive Director
Email: jconnick@maine.rr.com

Maine Center on Deafness is a community resource center that provides general information and referrals, deaf advocacy, consumer information, outreach services, support services and auxiliary aid information. Its focus is on linking the deaf population with existing community services.


Governor Baxter School for the Deaf
Mackworth Island
Falmouth, ME 04105
Tel: (207) 781-3165 (V/TTY)
Fax: (207) 781-6260
Larry Taub, Superintendent
Website: http://www.gbsd.org

The Governor Baxter School for the Deaf is a comprehensive educational organization that offers educational, residential, transitional and outreach programs while promoting deaf culture. GBSD strives for excellence in providing a continuum of services to meet the needs of infants, children and adults who are deaf and hard of hearing, their families, professionals, service providers, agencies and communities on a local, statewide, regional and national level.


GBSD Public School Outreach
Mackworth Island
Falmouth, ME 04105
Tel: (207) 781-6215 (V/TTY)
Fax: (207) 781-6220
Angela Bruno, Program Coordinator
Email: Angela.Bruno@gbsd.org

The Public School Outreach program of Governor Baxter School for the Deaf offers free consultative services to schools statewide that have students who are deaf or hard of hearing. The goal is to assist public school personnel in implementing an appropriate and positive educational experience for any student with a hearing loss. This is accomplished through consultation, technical assistance, inservice training, and regional peer support groups.


Aroostook Outreach: GBSD
232 Main Street, Suite 8
Fort Fairfield, ME 04742
Tel: (207) 472-0502 (V/TTY)
Fax: (207) 472-3157
Polly Earl, Program Coordinator
Email: Polly.Earl@fc.baxter.pvt.k12.me.us

Provides outreach services to Aroostook, Washington, Piscataquis, and Northern Penobscot Counties.

Bangor Outreach:GBSD
North Central Outreach
12 Acme Rd.
Suite 205
Brewer, Me 04412
FAX: 989-4079

For Early Childhood Services:
Tel: (207) 989-2305
Contct: Karen Hopkins
Email: Karen.hopkins@gbsd.org

For Public School Services:
Tel: 9889-2954
Contact: Melisssa Shaffer
Email: Melissa.Shaffer@gbsd.org

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General Disability

Maine Department of Education
Office of Special Services

23 State House Station
Augusta, ME 04333-0023
Tel: (207) 624-6650 (V)
TTY: (207) 624-6800
Fax: (207) 624-6651
David Noble Stockford, Director
http://maine.gov/education/speced/index.htm

Develops policy according to federal and state laws to provide all children with disabilities, between ages 5 and 20, with equal education opportunities. They are also responsible for statewide coordination of child identification activities, and responsible for special education regulations and revisions. Technical assistance is available to public or private agencies to provide and improve special education services to all children with a disability requiring special education.

A Due Process Consultant is available to initiate a hearing, request mediation or file a complaint regarding the provision of special education services.


Child Development Services (CDS)
23 State House Station
Augusta, ME 04333
Tel: (207) 624-6660 (V)
Fax: (207) 624-6661

Provides in-home support, preschool programs, and case management for children with disabilities from birth through 5 years of age. Regional offices are located in each county in the state.

Child Development Service Sites


CDS-Cumberland
50 Depot Rd.
Falmouth, ME 04105
Tel: (207) 781-8881 (V)
Fax: (207) 781-8855

CDS-Penobscot County
Intown Plaza, 376 Harlow St.
Bangor, ME 04401
Tel: (207) 947-8493 (V)
Fax: (207) 990-4819

CDS-Aroostook County
122 Academy Street
Presque Isle, ME 04769
Tel: (207) 764-4490 (V)
Fax: (207) 769-2275

CDS-Franklin County
144 High Street, Suite #2
Farmington, ME 04938
Tel:1-800-561-1165
(207) 778-6262 (V)
Fax: (207) 778-5548

CDS-Project PEDS
163 Silver Street
Waterville, ME 04901
Tel: (207) 877-2498 (V)

CDS-Waldo County
139 Northport Avenue
Belfast, ME 04915
Tel: (207) 338-1177 (V)
Fax: (207) 338-9978

CDS-So. Kennebec County
263 Water Street, Suite 500
Augusta, ME 04330
Tel: (207) 623-4989 (V)
Fax: (207) 622-9798

CDS-Androscoggin
377 Main Street
Lewiston, ME 04240
Tel: (207) 795-4022 (V)
Fax: (207) 795-4082

CDS-Opportunities
P.O. Box 272, Paris Street
Norway, ME 04268
Tel: (207) 743-9701 (V)
Fax: (207) 743-7063

CDS-SEARCH
35 A Gurnet Road
Brunswick, ME 04011
Tel: (207) 725-6365 (V)
Fax: (207) 725-4211

CDS-Piscataquis County
P.O. Box 326, 1099 Doughty Hill Rd.
Sangerville, ME 04479
Tel: (207) 564-3115 (V)
Fax: (207) 564-0019

CDS-Hancock County
190 Bangor Road
Ellsworth, ME 04605
Tel: (207) 667-7108 (V)
Fax: (207) 664-0461

CDS-Washington County
P.O. Box 718, 9 Cooper Street
Machias, ME 04654
Tel: (207) 255-4892 (V)
Fax: (207) 255-6457

CDS-York County
39 Limerick Road
Arundel, ME 04046
Tel: 1-800-993-7615
(207) 985-7861 (V)
Fax: (207) 985-6703

CDS-Lincoln County
Box 1114
Damariscotta, ME 04543 Tel: (207) 563-1411 (V)
Fax: (207) 563-6312

CDS-Knox County
111 Tillson Avenue
Rockland, ME 048413416
Tel: (207) 594-5933 (V)
Fax: (207) 594-1925


The Department of Behavioral and Developmental Services (BDS)
40 State House Station
Augusta, ME 04333-0040
Tel: 1-800-588-5511
(207) 287-4200 (V)
TTY: (207) 287-2000
Fax: (207) 287-1022
http://www.state.me.us/bds/

Children's Services
40 State House Station
Augusta, Me 04333
Joan Smyrski, Program Director
Tel:(207) 287-4251
Fax:: (207) 287-9915

Formerly known as Bureau of Children with Special Needs (BCSN), Children’s Services is a branch of BDS. Most services formerly provided through the Department are now contracted through community agencies. Children’s Services provides information and referrals for children with behavioral health care needs, such as developmental disabilities, mental retardation, Pervasive Developmental Disorder/autism, substance abuse, and mental health disorders. In addition, they provide resource information for families on crisis services, services in the community, information and assistance in identifying a child’s needs, family support groups, where to get help applying for entitlement programs such as SSI and Medicaid, adaptive equipment resources, printed materials, and national hotlines and web sites.

Regional Offices:

Region 1: (York and Cumberland Counties)
Tel: 1-800-269-5208 (V)
(207) 822-0126 (V) (Portland)
TTY: (207) 822-0272

Region 2: (Androscoggin, Franklin, Kennebec, Knox, Lincoln, Oxford, Sagadahoc, Somerset and Waldo Counties)

Augusta
56 State House Station
Augusta, ME 04333
Tel: 1-800-866-1814 (V)
(207) 287-7130 (V)
TTY: (207) 287-8126

Lewiston
15 Mollison Way
Lewiston, ME 04240
Tel: 1-800-866-1803 (V)
(207) 753-9100 (V)
TTY: (207) 753-9102
Fax: (207) 782-1753

Region 3: (Aroostook, Hancock, Penobscot, Piscataquis, and Washington Counties) Bangor
176 Hogan Rd.
Bangor, ME 04401
Tel: 1-800-963-9491 (V)
(207) 941-4360 (V)
TTY: (207) 941-4392
Fax: (207) 941-4389

Presque Isle
P.O. Box 1285
Presque Isle, ME 04769
Tel: 1-800-767-9857 (V)
(207) 764-2120 (V)
TTY: (207) 764-2017
Fax: (207) 764-2001

Office of Deaf Services
Meryl Troop, Director
Tel: (207) 287-4240 (V/TTY: Augusta)

All services available within the DMHMRSAS system are accessible to deafblind consumers and their families.


The Center for Community Inclusion & Disabilities Studies
5717 Corbett Hall
University of Maine
Orono, ME 04469-5717
Tel: 1-800-203-6957 (207) 581-1084
Fax: (207) 581-1231
TTY: (207) 581-3328
Email: ccimail@umit.maine.edu
Website: http://www.ccids.umaine.edu/

The Center for Community Inclusion & Disabilities Studies (CCI&DS) is Maine's University Affiliated Program. CCI&DS is a partnership of people bringing together the resources of the community and the university to improve the quality of life for people with disabilities and their families. Since its establishment in 1992, CCI has initiated projects with the aim to provide interdisciplinary education, community outreach and technical assistance, research, and dissemination. Focus areas are:

  • Self determination and advocacy
  • Inclusive education and early intervention
  • Family support
  • Community living
  • Health & mental health
  • Employment
  • Assistive technology.

LEARNS is a collaborative project between the Center for Community Inclusion and Maine Department of Education committed to enhancing the capacity of Maine's schools to provide high quality inclusive educational opportunities for all students. LEARNS staff travels to schools around the state providing staff development, student specific consultation, and facilitating team planning around restructuring, standards reform and inclusive education.


Maine Special Olympics
125 John Roberts Rd Unit 19
S. Portland ME 04106
207-879-0489
Email: someemail@aol.com
Website: http://www.specialolympicsmaine.org

Special Olympics provides year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with mental retardation, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in the sharing of gifts, skills and friendship with their families, other Special Olympic athletes, and the community.


Developmental Disabilities Council
State House Station 139
Augusta, ME 04333
Tel: 1-800-244-3990
(207) 287-4213 (V/TTY)
Fax: (207) 287-8001

Enhances public awareness to aid in the integration, independence, and productivity of and by persons with developmental disabilities.

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Family Support Services

Maine Parent Federation
PO Box 2067
Augusta, ME 04338
Tel: 1-800-870-7746 (V/TTY)
(207) 623-2144(V/TTY)
Fax: (207) 623-2148(V/TTY)
Email: parentconnect@mpf.org
Web Page: www.mpf.org

Maine Parent Federation is a private non-profit organization that provides information, support and training to parents and professionals through numerous grant funded projects. In existence since 1984, MPF is located in Gardiner, Maine, but assistance is available on a statewide basis. Through its projects, individuals can receive information about: specific disabilities, parenting issues, education, services, support groups and other resources available to assist families and professionals within the home, school and community. MPF services are offered at no cost to parents and professionals. Regular office hours are Monday - Friday 8:30 AM to 4:30 PM.

In addition to information and referral services, MPF offers outreach education through a variety of parent training workshops, a quarterly newsletter, a lending library of books and videos, legislative awareness through action alerts, and parent-to-parent support.

The Special-needs Parent Information Network (SPIN) is the oldest and best-known project of Maine Parent Federation. SPIN is the federally funded Parent Training and Information Center for Maine under the Individuals with Disabilities Education Act (IDEA). Through SPIN, parents of children with disabilities and the professionals who work with children and families are provided information, referral, support and training. SPIN publishes a newsletter every three months which provides information on upcoming events, workshops, and articles of interest to parents of children with disabilities.


GEAR Parent Network
Located at the Crisis & Counseling Center
32 Winthrop St.
Augusta, ME 04338
Tel: 1-800-264-9224 (V)
Email: scst@midmaine.com

Website: http://www.gearparentnetwork.com/

Parent to parent support by phone, at local GEAR support group meetings, at training workshops, and at social events sponsored by GEAR to bring parents togetherand prevent social isolation.


Southern Maine Parent Awareness
886 Main St., Suite 303
Sanford, ME 04073
Tel: 1-800-564-9696 (V/TTY)
(207) 324-2337 (V/TTY)
(207) 324-2338 (V/TTY)
Fax: (207) 324-5621
Email: Support@SOMEPA.org
Web Site: www.SoMePA.org

Southern Maine Parent Awareness (SMPA) is an organization comprised of parents, professionals and community volunteers that provides information and support services to families who have children with special needs. Originating in 1980 as a support group for parents, SMPA has evolved into a unique, regionally focused organization that currently serves over 6,000 individuals and families in the southern Maine area. Their goal is to help families and caregivers build working partnerships with the schools, state agencies and community organizations that serve them. SMPA offers a wide range of services for families, the majority of which are provided at no cost to the family. Their individualized information and referral services are designed to help parents understand the nature of their child's disability, the types of services that will be needed and how to access them. They also provide families with the information, training and peer and professional support necessary for them to become active, effective members of their children's educational and treatment teams.

Publications include: comprehensive resource lists and guides that identify contact information for services and supports; a quarterly newsletter, containing articles by parents and professionals, a calendar of events and listings of support groups: "Parent to Parent: A Collection of Parent Reflections", stories written by parents about their experience raising a child with special needs; listings of web sites that offer disability and family specific information; and "A Parent's Guide to Special Education in Maine".

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Advocacy

Disability Rights Center of Maine
P.O. Box 2007
24 Stone Street
Augusta, ME 04338-2007 Jim McGurty, Civil Rights Advocate
Linda Dowell, Advocate for People with Developmental Disabilities
Tel: 1-800-452-1948 (V/TTY)
(207) 624-2774 (V/TTY)
Fax: (207) 621-1419
Email: advocate@DRCME.org
Website: http://drcme.org

DRCM is a private non-profit organization, independent of state government, which provides protection and advocacy statewide to people with disabilities. Provides information about legal rights and service systems; refers people to appropriate services; represents individuals in meetings, hearings, or court; provides training on rights and advocacy skills; works for broad systemic reform and change.


The Maine Long-Term Care Ombudsman Program
P.O. Box 128
One Weston Court
Augusta, ME 04332
Tel: 1-800-499-0299 (V/TTY)
(207) 621-1079 (V/TTY)
Fax: (207) 621-0509
Email: MLTCOP@MaineOmbudsman.org
Web Site: http://www.maineombudsman.org/

An advocacy program for long-term care consumers. The Ombudsman Program provides advocacy services for consumers of home health services and for residents in nursing homes and other long-term care facilities.


Maine Center on Deafness
68 Bishop St. Suite 3
Portland, Me 04103

Mary Edgerton
Tel: 1-800-639-3884 (V/TTY)
(207) 797-7656 (V/TTY)
Fax: (207) 797-9791
Email: medge@maine.rr.com

Maine Center on Deafness promotes the rights of Deaf individuals throughout the state. MCD advocates for Deaf and hard of hearing individuals when they have civil rights problems directly related to their deafness in employment, housing, federal, state and local government programs, education, and public accommodations. MCD provides individual representation in meetings and hearings, and assists in obtaining workplace and other accommodations such as TTY's and interpreters. MCD also staffs the Deaf Advocacy Group, which is a statewide coalition of organizations and individuals committed to obtaining equal access for the deaf and hard of hearing in Maine.


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Transition

Maine Transition Network
Committee on Transition (COT)
P.O. Box 2219
Augusta, ME 04338-2219
Tel: 1-800-328-9549 (V)
(207) 621-9878 (V)
Fax: (207) 623-1677
Email: cot@mainetransition.org

Maine Committee on Transition supports youth with disabilities in making meaningful choices as they transition to adulthood by promoting collaboration within communities.

The following services are provided through their regional programs:

  • Information and Referral
  • Training of school-based teams to use student-centered planning
  • Helping people make connections
  • Coordinating access to programs and services

Regional Offices:

Bridges Council on Transition
Presque Isle (207) 764-8331
Aroostook 1-800-464-7664

Downeast Regional Transition Board
Ellsworth (207) 664-6000
Hancock & Washington

Penquis Regional Transition Board
Brewer (207) 992-2270
Penobscot & Piscataquis

Mid-Maine Regional Transition Board
Richmond (207) 737-8918
Somerset, Kennebec, Knox, Waldo, Lincoln, & Sagadahoc

Andrews Council on Transition Board
Turner (207) 225-5005
Androscoggin, Oxford, & Franklin

Southern Maine Advisory Council on Transition
Portland (207) 878-5166 or
1-800-639-2420
Cumberland & York

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Assistive Technology

Maine Relay Services (Telecommunication Relay Service)
TTY users dial 711
Voice users dial 1-800-457-1220

Maine Relay Services, also known as "Dual Party Relay", is a 24-hour-a-day, seven-day-a-week service that provides communications links between those who use a Telecommunications Device for the Deaf (TTY) and those who use a standard voice telephone. TTY’s are special typewriter style devices used by people who are hard of hearing, speech impaired, or deaf to communicate over the telephone. Individuals who are deafblind can also use this service using a tele-braille telephone.

Maine Relay Service communicates simultaneously with each party. When the hearing person speaks, the relay operator types the information to the TTY caller. When the TTY caller responds, the relay operator voices the typed information to the hearing person.


Telecommunications Equipment Project
Maine Center on Deafness
TEP Director
Address 68 Bishop St. Suite 3
Portland, ME 04103
Tel: 1-800-639-3884
(207) 797-7656
Email: mcdtep@maine.rr.com
Website: http://www.mainecenterondeafness.org

This project has two programs: Cost Sharing and Lending Programs. Telecommunications devices, including TTY’s, amplified telephones, speaker phones, and large button speaking phones are either loaned or sold at half price to Deaf/Hard of Hearing People and persons with mobility, vision, or speech disabilities, depending on income requirements. This project also publishes an annual directory of TTY users in Maine.


Alpha One
Email: info@alphaonenow.com
Web Site: http://www.alphaonenow.com

Alpha One is a community-based enterprise directed and managed by people with disabilities dedicated to developing independent living opportunities. Through two offices statewide, it promotes peer interaction, community resource utilization, and self-advocacy skills. It seeks to ensure equal opportunities and compliance with all laws through increased public awareness, professional consultation, and community advocacy. Low interest loans can cover hearing aids, flashing alert systems and agency TTY’s.

Regional Offices:

127 Main Street
South Portland, ME 04106
Tel: 1-800-640-7200 (V/TTY)
(207) 767-2189 (V/TTY)
Fax: (207)-799-8346
Betsy Balzano, RN, Branch Manager
Email: betsy_balzano@alphaonenow.com

1048 Union St.
Suite 2
Bangor, ME 04401
Tel: 1-800-300-6016 (V/TTY)
(207) 941-6553
Fax: 1-207-941-6410
Kelley McTague, COTA/L, Branch Manager
Email: kmctague@alphaonenow.com


Dorothy Ames Trust Fund
Key Bank Trust Client Services
Mail Code NY-31-66-0442
66 South Pearl St. 4th Floor
P.O. Box 22042
Albany, MY 12201
Attn: Ed Deluccia
Tel: 1-866-238-8650 (V)
1-518-257-9662 (V)
Fax: 1-518-257-9670

Provides grants for purchase of hearing aids and auditory trainers for deaf children of New England, given a copy of audiologist report, statement of need from parents, estimate of cost for equipment or services requested, and most recent signed tax return.


HEAR NOW
6700 Washington Ave. South
Eden Prairie, MN 55344
Tel: 1-800-648-4327 (voice message only)
Fax: (612) 828-6946
Contact person is Marge Mahoney
Email: Marge@sotheworldmayhear.org
Website: http://www.sotheworldmayhear.org

HEAR NOW is a national non-profit agency and is the US Program of the Starkey Hearing Foundation. They are an agency of last resort that provides hearing aids to deaf and hard of hearing people with limited financial resources. Those seeking assistance are asked to exhaust all other sources before contacting HEAR NOW, i.e. Medicaid, Medicare, vocational rehabilitation, Veteran’s Administration, insurance, etc. There is a non-refundable processing fee of $30.00 per hearing aid provided. They also collect old, broken, and no-longer-used hearing aids for recycling.


Lions Club
President for State of Maine Sight and Hearing Program
Thelma "Bunny" Parks
PO Box 335
Readfield, ME
Tel: (207) 685-3247

Local Lions Clubs may donate towards hearing aids and adaptive equipment. Call the local chapter nearest you to inquire.


UCP of Maine
UCP (United Cerebral Palsy) of Maine
Evergreen Woods
700 Mount Hope Avenue, Suite 320
Bangor, ME 04401
Tel: (207) 941-2952 (V/TTY)
Email: ucp2@midmaine.com
Web site: http://www.ucp.org

UCP of Maine is designed to help people of all ages with disabilities expand their lives through the use of assistive technology. UCP of Maine is a place to discover, learn about, and practice using assistive technologies. UCP of Maine is filled with adapted games and puzzles for play; equipment for recreation; alternative devices for communication; mobility aids; and computers to enhance education and employment skills. Membership allows individuals, families, educators or employers to borrow equipment for use at home, day care, in school, or on the job.


Maine CITE Coordinating Center
University College
46 University Drive
Augusta, ME 04333
Tel: (207) 621-3195 (V)
TTY: (207) 621-3482
Fax: (207) 621-3193
Email: K.Powers@maine.edu
Website: http://www.mainecite.org/

Maine CITE (Consumer Information and Technology Training Exchange) provides information, training, and peer support to help people with disabilities to obtain and maintain adaptive devices, equipment and services (assistive technology).

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Services for Elders

Bureau of Elder and Adult Services
Central Office
11 State House Station
442 Civic Center Drive
Augusta, Maine 04333
Tel: (800) 262-2232 (V)
(207) 287-9200 (V)
Fax: (207) 287-9229
TTY: (888) 720-1925
(207) 287-9234
Web site: http://www.maine.gov/dhhs/beas/>

The Bureau of Elder and Adult Services promotes optimal independence for elders and adults with disabilities. Programs include: Adult Protective Services, Home and Community Based Care, Managed Care, Resource Development/Certificate of Need, Community Services and Disability Determination Services.

Regional Offices:

Central Region

11 State House Station
35 Anthony Ave.
Augusta, ME 04333-0011
Tel: (800) 452-1962
(207) 624-8060
TTY: (207) 624-5289
Fax: (207) 624-5283

360 Old County Road
Rockland, ME 04841
Tel: (800) 432-7802
(207) 596-4200
TTY: (207) 596-4201
Fax: (207) 596-4161

Northern Region

396 Griffin Road
Bangor, ME 04401
Tel: (800) 432-7825
(207) 561-4380
TTY: (207) 561-4403
Fax: (207) 561-4396

17 Eastward Lane
Ellsworth, ME 04605
Tel: (800) 432-7823
(207) 667-1600
TTY: (207) 667-1639
Fax: (207) 667-4184

100 Court Street
Machias, ME 04654
Tel: (800) 432-7846
(207) 255-2046
TTY: (207) 255-6866
Fax: (207) 255-2022

88A South Street
Calais, ME 04619
This is an Unmanned office
Tel: (207) 454-9014
TTY: (207) 454-3415
Fax: (207) 454-9012

11 High Street
Houlton, ME 04730
Tel: (800) 432-7338
(207) 532-5094
TTY: (207) 532-5047
Intake Fax: (207) 532-5004
Emergendcy Round the Clock # 1-800-624-8404

14 Access Highway
Caribou, ME 04736
Tel: (800) 432-7366
(207) 493-4000
TTY: (207) 493-4034
Fax: (207) 493-4033

137 Market Street
Fort Kent, ME 04743
Tel: (800) 432-7340
(207) 834-7700 TTY: (207) 834-7702
Fax: (207) 834-7701

Southern Region

208 Graham Street
Biddeford, ME 04005
Tel: (800) 322-1919
(207) 286-2400
TTY: (207) 286-2402
Fax: (207) 286-2543

161 Marginal Way
Portland, ME 04101
Tel: (800) 482-7520
(207) 822-2149
TTY: (207) 822-2293
Fax: (207) 822-2162

200 Main Street
Lewiston, ME 04240
Tel: (800) 482-7517
(207) 795-4448
TTY: (207) 795-4595
Fax: (207) 795-4445


Area Agencies on Aging

Central resources for elderly services with five regional offices. They provide information and referrals.

Aroostook Area Agency on Aging
P.O. Box 1288, 33 Davis Street
Presque Isle, Maine 04769
Tel: 1-800-439-1789 (V)
(207) 764-3396 (V)

Eastern Agency on Aging (Hancock, Penobscot, Piscataquis and Washington Counties)
450 Essex Street
Bangor 04401-9810
Tel: 1- 800-432-7812 (V)
(207) 941-2865 (V)

Senior Spectrum
(Kennebec, Knox, Lincoln, Sagadahoc, Somerset and Waldo Counties)
P.O. Box 2589 1 Western Court
Augusta, Maine 04338-2589
Tel: 1-800-639-1553 (V)
(207) 622-9212 (V)

Southern Maine Area Agency on Aging
(Cumberland and York Counties)
136 US Rt. 1
Scarborough, ME 04074
Tel: 1-800-427-7411 (V)
(207) 396-6500 (V)
Fax (207) 883-8249

Seniors Plus (formerly Western Are Agency on Aging)
(Androscoggin, Franklin and Oxford Counties)
PO Box 659, 8 Falcon Rd.
Lewiston, Maine 04240
Tel: 1-800-427-1241 (V)
(207) 795-4010 (V)
TTY: (207) 795-7232
Fax: (207) 795-4009

Catholic Charities Maine
March 2006

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