General Information

Pain Support Groups

Sites Sponsored by Individuals

Conditions that have a large pain component

CHRONIC PAIN


Chronic pain has a devastating effect on the people affected by it. It is often difficult to find appropriate treatments. This guide is an attempt to provide access to some educational and treatment resources. Please contact us at info@abilitymaine.org if you have resources that you think we should include in this guide. -Norm

General Information

The Mayday Pain Project
A portal type site that has lots of links.
http://www.painandhealth.org/index.html

Partners Against Pain
Partners Against Pain is an alliance of patients, caregivers, and healthcare providers working together to alleviate unnecessary suffering by leading efforts to advance standards of pain care through education and advocacy.
http://www.partnersagainstpain.com/

Painlab.com
Painlab.com's mission is to provide the chronic pain sufferer with information regarding Chronic Pain and the medications used to treat this illness. (A commercial site with lots of information about medications.)
http://www.painlab.com/

The Chronic Pain Haven
A New Zealand site that has a lot of background information about chronic pain.
http://www.chronic-pain-haven.com/index.html



Pain Support Groups

Connections (Maine group)
We are a support group for people with chronic pain in the Biddeford-Saco-Old Orchard Beach) Maine area. We meet twice a month to discuss the challenges of living with chronic pain and offer support to each other. We also hear updates on research and therapies from physicians and other professionals in the area. http://desktoppub.com/support/about.html

Chronic Pain Support Group (CPSG)
Our primary goal at the Chronic Pain Support Group (CPSG) is to provide a safe Internet environment where those living in pain can get the support they need. Our message board and chat rooms are the primary sources of support.
http://www.chronicpainsupport.org/

American Chronic Pain Association
$30 inital membership fee; support groups in Maine.
http://www.theacpa.org/

Family Caregiver Alliance
The focus is on providing resources for those caring for people who have chronic illnesses.
http://www.caregiver.org/caregiver/jsp/home.jsp

Friend's Health Connection
A nonprofit support network that connects people with similar health problems for the purpose of mutual support.
http://www.48friend.org/index.php

National Family Caregivers Association (NFCA)
NFCA focuses on family caregivers.
http://www.nfcacares.org/

The Well Spouse Foundation
$25 yearly membership fee. (No well spouse is denied membership in WSF due to financial hardship. If you are unable to afford full membership dues at this time, please enclose whatever amount you can.) Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled.
http://www.wellspouse.org/

The American Pain Foundation
Information. Education. Advocacy.
http://www.painfoundation.org/default.asp



Sites Sponsored by Individuals

Fibroworld
Fibromyalgia; Myofascial Pain Syndrome; Chronic Pain
http://members.aol.com/_ht_a/fibroworld/index.htm?mtbrand=AOL_US

InfoMIN®
Chronic Pain, CFS, FMS and other Medical Resources
http://www2.rpa.net/~lrandall/



Conditions that have a large pain component

AbilityMaine Fibromyalgia Guide
http://www.abilitymaine.org/resource/guides/fibro.html

American College of Rheumatology
This site maintains a list of practicing Rheumatologists (Maine is included)
http://www.rheumatology.org/index.asp

American RSDHope Group
Reflex Sympathetic Dystrophy Syndrome, also known as CRPS, is a progressive disease of the Autonomic Nervous System that can follow a simple trauma (fall or sprain) a break or fracture (especially wrist and ankle) a sharp force injury (such as a knife or bullet wound), heart problems, infections, surgery, RSI/CTS, spinal injuries/disorders, or major trauma.
http://www.rsdhope.org/

Spondylitis Association of America (SAA),
a national non-profit volunteer organization, is dedicated to the eradication of ankylosing spondylitis and related diseases through education, advocacy, awareness and research.
http://www.spondylitis.org/

Reflex Sympathetic Dystrophy Syndrome Association
The Reflex Sympathetic Dystrophy Syndrome Association website is dedicated to providing the most comprehensive and timely information for those of you who are affected by, or interested in, Reflex Sympathetic Dystrophy Syndrome (RSD or RSDS), also known as Complex Regional Pain Syndrome (CRPS). This neurologic syndrome often is characterized by disabling pain.
http://www.rsds.org/

Interstitial Cystitis Network
Interstitial Cystitis is a bladder and pelvic pain disorder effecting millions men, women and children throughout the world. With symptoms of frequency, urgency. and/or pain, diagnosis can be elusive. Patients are often misdiagnosed with UTI.
http://www.ic-network.com/

RSI Support/Injured Worker Groups Provided by the CTD Resource Network, Inc. A 501(c)(3) organization providing educational material and charitable assistance related to the prevention and treatment of cumulative trauma disorders (also known as repetitive strain injuries).
http://www.tifaq.org/information/supportgroups.html



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