NAVIGATION


Maine Links

Maine Support Groups

Speaking For Ourselves

Resources

Educational Resources

Autism Research

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Autism Guide


The information below is intended to help you locate relevant health, medical and personal resources on Autism. The links below are the most current that we could locate for you. We hope you find them helpful in your search for information. ~Russell Anderson, Ability Maine

*** Disclaimer ***
Ability Maine does not imply endorsement of these sites, their content or products. Use of this information is intended only for educational purposes, as reference points to prompt your search for accurate information pertaining to your personal issues around Traumatic Brain Injury. Professional advice or consultation should be sought from a qualified and licensed practitioner when inquiring about medical services.

Definition of Autism

Autism is classified as one of the pervasive developmental disorders of the brain. It is not a disease. People with classical autism show three types of symptoms: impaired social interaction, problems with verbal and nonverbal communication, and unusual or severely limited activities and interests. These symptoms can vary in severity. In addition, people with autism often have abnormal responses to sounds, touch, or other sensory stimulation. Symptoms usually appear during the first three years of childhood and continue through life. Recent studies strongly suggest that some people have a genetic predisposition to autism. Researchers are looking for clues about which genes contribute to this increased susceptibility. In some children, environmental factors also may play a role. Studies of people with autism have found abnormalities in several regions of the brain which suggest that autism results from a disruption of early fetal brain development. Autism affects an estimated 10 to 20 of every 10,000 people, depending on diagnostic criteria used, and strikes males about four times more often than females.

Source Credit: National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/disorders/autism/autism.htm


Maine Links

Autism Society of Maine
The Autism Society of Maine invites you to join families and professionals in the pursuit of knowledge and understanding of autism spectrum disorders, treatments and support of Maine children and adults with autism.
http://www.asmonline.org/

Learning Disabilities Association of Maine
The organization is dedicated to enhancing the quality of life for all individuals with learning disabilities and their families, to alleviating the restricting effects of learning disabilities, and to supporting endeavors to determine the causes of learning disabilities.
http://www.ldame.org/index.html


Maine Support Groups

PARENT TO PARENT SUPPORT GROUPS

Victoria Beetel
393 Maple Road
Atkinson EM 04426
327-1486

Helen Jones
124 Range Road
Dover-Foxcroft ME 04426
564-7681

Larry and Rachel Perkins
14 Pleasant Avenue PO Box 278
Sangerville ME 04479

Suzane Provost
9 Central Avenue
Dover-Foxcroft ME 04426

FAMILY SUPPORT GROUPS

GEAR Support Groups for Parents of Children with Emotional/Behavioral Needs
Helen Jones
564-3361 or 800-264-9224

Parents Anonymous of Maine/Mainely Parents
Pam Marshall
800-249-5506

Statewide parent support groups and talkline
Parent Professional Autism PDD Support Group
Molly Eldridge or Betty Crossman
50 North Street
Dover Foxcroft ME 04426
Molly 973-3589 or Betty 973-3590

Tri-County Help in Transition
Tammy McKenney
PO Box 167
Dexter ME 04930
924-3307

Family Support Services for Children in Maine – From NAMI Maine
http://www.nami.org/MSTemplate.cfm?Section=Family_and_Peer_Supports
1&Site=NAMI_Maine&Template=/ContentManagement/
ContentDisplay.cfm&ContentID=49514

Southern Maine - Support group for Autism/PDD/Aspergers
Meet last Thursday of month from 6:30-8:00 p.m.
Contact: Wanda Gleason 207-636-1268 or support@somepa.org At Goodall Hospital, Sanford, Maine.
This group is sponsored by the Southern Maine Parent Awareness which can be reached via phone at 207-324-2337, in Maine only at 800-564-9696, or via email: support@somepa.org
Website:
http://www.somepa.org


Speaking For Ourselves

Autistics.Org
The purpose of the autistics.org project is to connect autistic people with the services we need to live whole and happy lives. The immediate goal of autistics.org is to build a global database of information and resources by and for persons on the autistic spectrum.
http://www.autistics.org/

i autistic
Autism resources by a Singapore autistic who has accepted Humanity. Includes free autism tests, games, videos, books, art, resources & explainations about autism.
(An interesting, but not always language sensitive site. -ed.)
http://iautistic.com

Getting the Truth Out
"The young woman in this picture has autism, a debilitating developmental disorder that affects communication, socialization, and behavior. . . . She can't speak, so this website is speaking for her and many others like her. Our aim is to portray some of the realities of living with autism."
http://www.gettingthetruthout.org/

ANI - Autism Network International
An autistic-run self-help and advocacy organization for autistic people.
http://ani.autistics.org/

Autistic Advocacy
A repository for my articles, editorials, and questionable attempts at humor. All content on this site by Frank Klein
http://home.att.net/~ascaris1/index.html

AS Teens
Do You Have Asperger's Syndrome (AS)? Are you a teen? Do you want a site that can help you out? Then this site may be for you! I am a teen, and I am willing to help out other teens who have AS.
http://aspergerteens.com


Resources

O.A.S.I.S.
Online Asperger Syndrome Information & Support - A parent run information portal.
http://www.udel.edu/bkirby/asperger/

The Asperger's Association of New England – Maine Chapter
http://www.aaneme.org/

National Institute of Mental Health
NIMH scientists are dedicated to understanding the workings and interrelationships of the various regions of the brain, and to developing preventive measures and new treatments for disorders like autism that handicap people in school, work, and social relationships.
http://www.nimh.nih.gov/health/publications
/autism/complete-publication.shtml

Autism Society of America
Autism is a complex developmental disability that typically appears during the first three years of life. The result of a neurological disorder that affects the functioning of the brain, autism and its associated behaviors have been estimated to occur in as many as 2 to 6 in 1,000 individuals (Centers for Disease Control and Prevention 2001). Autism is four times more prevalent in boys than girls and knows no racial, ethnic, or social boundaries. Family income, lifestyle, and educational levels do not affect the chance of autism's occurrence.
http://www.autism-society.org/site
/PageServer?pagename=newsite_homepage

The American Academy of Pediatrics
A report by the American Academy of Pediatrics: The Pediatrician's Role in the Diagnosis and Management of Autistic Spectrum Disorder in Children.
http://aappolicy.aappublications.org/
cgi/content/full/pediatrics;107/5/1221

Wrightslaw.com
Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities.
http://www.wrightslaw.com/

Autism Conferences
This board is for the public posting of autism related conferences. If you know of a conference that is not listed here, please add it along with a link to the conference site for more information.
http://www.network54.com/Forum/58400?it=0


Educational Resources

Autism: Hand In Hand
Autism educational portal with collection of programs, learning materials, play activity ideas and much more.
http://www.autismhandinhand.com/

New England Center for Children
Since its founding in 1975, The New England Center for Children has remained true to its original mission: providing state-of-the-art education and individualized treatment-with care and respect-for children with autism and other disabilities.
http://www.necc.org/

The Asperger Syndrome Coalition of the U.S
The Asperger Syndrome Coalition of the U.S. is a national nonprofit organization committed to providing the most up-to-date and comprehensive information on Asperger Syndrome and related conditions
http://www.asperger.org/

AutismOnline
The mission of AutismOnline is to connect the parents of newly diagnosed children with autism and professionals working with these children with critical resources, support, and research information in their own language. (Commercial Site)
http://www.autismonline.org/


Autism Research

Autism Research Institute
San Diego, California; "ARI is primarily devoted to conducting research, and to disseminating the results of research, on the causes of autism and on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood. We provide information based on research to parents and professionals throughout the world."
http://www.autism.com/

Center for the Study of Autism
The Center for the Study of Autism (CSA) is located in the Salem/Portland, Oregon area. The Center provides information about autism to parents and professionals, and conducts research on the efficacy of various therapeutic interventions. Much of our research is in collaboration with the Autism Research Institute in San Diego, California.
http://www.autism.org/contents.html

The Yale Developmental Disabilities Clinic
The Yale Developmental Disabilities Clinic offers comprehensive, multidisciplinary evaluations for children with social disabilities, usually focusing on the issues of diagnosis and intervention. The clinic is headed by Fred Volkmar, M.D., and Ami Klin, Ph.D., two of the most respected experts in the field of autism, Asperger's Syndrome (AS), and other Pervasive Developmental Disorders (PDDs). We are also conducting several large research projects on autism, AS, and other PDDs. The clinic is located in the Child Study Center at Yale University, in New Haven, CT.
http://info.med.yale.edu./chldstdy/autism/

Clinical Trials: Autism
ClinicalTrials.gov provides patients, family members, health care professionals, and members of the public easy access to information on clinical trials for a wide range of diseases and conditions. The U.S. National Institutes of Health (NIH), through its National Library of Medicine (NLM), has developed this site in collaboration with all NIH Institutes and the Food and Drug Administration (FDA).
The site was launched in February 2000 and currently contains approximately 7,600 clinical studies sponsored by the National Institutes of Health, other Federal agencies, and the pharmaceutical industry in over 89,000 locations worldwide. Studies listed in the database are conducted primarily in the United States and Canada, but include locations in about 80 countries. ClinicalTrials.gov receives over 3 million page views per month and hosts approximately 11,000 visitors daily.
http://clinicaltrials.gov/ct2/results?term=%22Autistic+Disorder%22+%5BDISEASE%5D


More Links

International and National Autism Links
Extensive list of Autism-related links.
http://www.autism-resources.com/links/organizations.html



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