Alzheimer's Guide


The information below is intended to help you locate relevant health, medical and personal resources on Alzheimer's. The links below are the most current that we could locate for you. We hope you find them helpful in your search for information.
Ability Maine does not imply endorsement of the following sites, nor their content or products. Use of this information is intended only for educational purposes to prompt your search for accurate information pertaining to your personal issues around Alzheimer’s. Professional advice or consultation should be sought from a qualified, licensed practitioner when inquiring about medical services.
~Russell Anderson, Ability Maine




Maine Alzheimer's Association
The Mission of the Maine Alzheimer's Association is to eliminate Alzheimer's disease through the advancement of research and to enhance care and support for individuals, their families and caregivers.
http://www.alz.org/maine/

About Alzheimer's Disease
Alzheimer's disease is a progressive, degenerative disease that attacks the brain and results in impaired memory, thinking and behavior. It is the most common form of dementia. A person with Alzheimer's disease suffers gradual memory loss, a decline in ability to perform routine tasks, impairment of judgment, personality change, loss of language skills and lowered resistance to infections and other illnesses. The affected family struggles with the physical, emotional and financial demands of caregiving. The causes of Alzheimer's disease are still unknown and there is no prevention or cure. Alzheimer's disease is terminal; it is the fourth leading killer of adults nationwide. An estimated 4 million Americans have Alzheimer's disease and nearly 30,000 Maine people are affected by Alzheimer's disease or a related dementia.
http://www.alz.org/alzheimers_disease_alzheimers_disease.asp

Dementia
Dementia is not a specific disease. It is a descriptive term for a collection of symptoms that can be caused by a number of disorders that affect the brain. People with dementia have significantly impaired intellectual functioning that interferes with normal activities and relationships. They also lose their ability to solve problems and maintain emotional control, and they may experience personality changes and behavioral problems, such as agitation, delusions, and hallucinations. While memory loss is a common symptom of dementia, memory loss by itself does not mean that a person has dementia. Doctors diagnose dementia only if two or more brain functions - such as memory, language skills, perception, or cognitive skills including reasoning and judgment - are significantly impaired without loss of consciousness.  Source credit: "The Dementias: Hope Through Research," NINDS, 2004
http://www.ninds.nih.gov/health_and_medical/pubs/dementias.htm#Whatis

Helpline
Night or day, one phone call away…1-800-660-2871

Area Agencies on Aging
Area Agencies on Aging are the central resource for elder services in your area.
http://www.maine.gov/dhhs/beas/resource/aaa.htm

Alzheimer's Care and Support
Services for people with Alzheimer's Disease or other dementias, and their caregivers include diagnosis and evaluation at memory clinics, adult day services, in-home and overnight respite, home care services and special care units in residential care and nursing facilities.
http://www.maine.gov/dhhs/beas/resource/alzheim.htm


National Information Resources


Information Resources listed below are from:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

NINDS health-related material is provided for information purposes only and does not necessarily represent endorsement by or an official position of the National Institute of Neurological Disorders and Stroke or any other Federal agency. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history.

The National Institute of Neurological Disorders and Stroke, a component of the National Institutes of Health, is the leading federal supporter of research on brain and nervous system. The Institute also sponsors an active public information program and can answer questions about research related to the dementias.

For information on other neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute's Brain Resources and Information Network (BRAIN) at:
BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov


Information is also available from the following Federal agencies:


Alzheimer's Disease Education and Referral Center (ADEAR)
P.O. Box 8250
Silver Spring, MD 20907-8250
adear@alzheimers.org
http://www.nia.nih.gov/alzheimers
Tel: 301-495-3311 800-438-4380
Fax: 301-495-3334

National Institute of Mental Health (NIMH)
National Institutes of Health, DHHS
6001 Executive Blvd. Rm. 8184, MSC 9663
Bethesda, MD 20892-9663
nimhinfo@nih.gov
http://www.nimh.nih.gov
Tel: 301-443-4513/301-443-8431 (TTY) 866-615-NIMH (-6464)
Fax: 301-443-4279


Private voluntary organizations that offer information and services to those affected by dementia include the following:


Alzheimer's Association
225 North Michigan Avenue
17th Floor
Chicago, IL 60601-7633
info@alz.org
http://www.alz.org/index.asp
Tel: 312-335-8700 800-272-3900
Fax: 312-335-1110


Alzheimer's Foundation of America
322 Eighth Avenue
6th Floor
New York, NY 10001
info@alzfdn.org
http://www.alzfdn.org
Tel: 866-AFA-8484 (232-8484)
Fax: 516-767-6864


National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.


Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
info@caregiver.org
http://www.caregiver.org/caregiver/jsp/home.jsp
Tel: 415-434-3388 800-445-8106
Fax: 415-434-3508
Supports and assists caregivers of brain-impaired adults through education, research, services, and advocacy. Information clearinghouse covers current medical, social, public policy, and care-giving issues related to brain impairments.


C-Mac Informational Services/Caregiver News [For Alzheimer'sType Dementia Caregivers]
271 Cedar Lane
East Meadow, NY 11554-2720
caregiver_cmi@hotmail.com
http://www.caregivernews.org/pages/1/index.htm
Tel: 516-481-6682
Fax: 516-486-7820
Publishes and distributes a free monthly newsletter relative to caregiving techniques, medical and legal issues, and community resources. Also offers an information pack for families of newly diagnosed patients.


National Family Caregivers Association
10400 Connecticut Avenue
Suite 500
Kensington, MD 20895-3944
info@nfcacares.org
http://www.nfcacares.org
Tel: 301-942-6430 800-896-3650
Fax: 301-942-2302
Grassroots organization dedicated to supporting and improving the lives of America's family caregivers. Created to educate, support, empower, and advocate for the millions of Americans who care for their ill, aged, or disabled loved ones.


Well Spouse Foundation
63 West Main Street Suite H
Freehold, NJ 07728
info@wellspouse.org
http://www.wellspouse.org
Tel: 800-838-0879 732-577-8899
Fax: 732-577-8644
International non-profit organization whose mission is to provide emotional support to, raise consciousness about, and advocate for the spouses/partners and children of the chronically ill and/or disabled.


National Respite Network and Resource Center
800 Eastowne Drive
Suite 105
Chapel Hill, NC 27514
http://chtop.org/ARCH.html
Tel: 800-7-RELIEF (773-5433) 919-490-5577
Fax: 919-490-4905
Information and referral service that assists and promotes the development of quality respite and crisis care programs; helps families locate respite and crisis care services in their communities; and sponsors advocacy and awareness efforts concerning respite care.

American Health Assistance Foundation
22512 Gateway Center Drive
Clarksburg, MD 20871
info@ahaf.org
http://www.ahaf.org
Tel: 301-948-3244 800-437-AHAF (2423)
Fax: 301-258-9454
Non-profit charitable organization dedicated to funding research and educating the public on Alzheimer's disease, glaucoma, macular degeneration, heart disease, and stroke. Provides emergency financial assistance to Alzheimer's disease patients and their caregivers.

National Hospice and Palliative Care Organization /Natl. Hospice Foundation
1700 Diagonal Road
Suite 625
Alexandria, VA 22314
nhpco_info@nhpco.org
http://www.nhpco.org
Tel: 703-837-1500 Helpline: 800-658-8898
Fax: 703-837-1233
Non-profit membership organization representing hospice and palliative care programs and professionals. Provides free referrals to the public for hospice listings across the United States and internationally. Distributes free packets of general information describing hospice services and the Medicare Hospice Benefit.

Institute for the Study of Aging
767 Fifth Avenue
Suite 4600
New York, NY 10153
hfillit@rslmgmt.com
http://www.aging-institute.org
Tel: 212-572-4086
Fax: 212-572-4094
Private foundation that facilitates the development and advancement of new therapies and interventions for cognitive aging and Alzheimer's disease through funding of domestic and international research.



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